Retinitis Pigmentosa: What you should know
This booklet is for people with Retinitis Pigmentosa and their families and friends. It provides information about Retinitis Pigmentosa and answers questions about the cause and symptoms of this progressive eye disease. Diagnosis and types of treatment are also described.
Read this booklet online, or download it, by following the links below. Retinitis Pigmentosa: What you should know is available as a PDF, a DAISY Digital Talking Book with narrated audio and NCC structure, or as a Microsoft Word file.
Retinitis Pigmentosa (PDF, 302.3 kB)
Retinitis Pigmentosa (DAISY - narrated audio with NCC
structure, .zip, 6.1 MB)
Retinitis Pigmentosa (Word, 74.5 kB)
Contents
- What is retinitis pigmentosa? - 3
- What is the retina? - 4
- How does retinitis pigmentosa develop? - 5
- Who is at risk? - 6
- What are the signs and symptoms? - 7
- What is the difference between retinitis pigmentosa and its related syndromes? - 8
- How is retinitis pigmentosa detected? - 10
- Can retinitis pigmentosa be cured? - 11
- Can retinitis pigmentosa be treated? - 12
- What is genetic counselling? - 13
- What can I do if I have already lost some vision? - 14
- What research is being done? - 14
- What can I do to protect my vision? - 15
- What should I ask my eye care professional? - 16
- What is Retina New Zealand? - 18
- Where can I get more information? - 19
The Royal New Zealand Foundation of the Blind is working to reduce vision impairment and blindness through undertaking health promotion activities in partnership with other organizations. We also aim to raise awareness about inherited and acquired eye conditions that cause vision loss. This booklet is one of 5 in a series of information booklets on the main eye conditions that can lead to blindness: Age-related Macular Degeneration, Cataracts, Glaucoma, Diabetic Retinopathy and Retinitis Pigmentosa.
For more information about the RNZFB, contact:
Technology, Employment and Awareness division
Royal New Zealand Foundation of the Blind
Private Bag 99941, Newmarket, Auckland
Telephone: (09) 355 6900 or 0800 24 33 33
Email: cea
Website: www.rnzfb.org.nz